I was kind of tired last night when I made my post. In looking over the comments, I think I did a disservice to the history of The Daugther and Tourette's. Let me back up and try to make a long story as short as possible.
When The Daughter was nearing her fifth birthday I began to take notice of some jerky movements, specifically a quick side to side twitch, sort of like you do when you shake your bangs out of your eyes. I remember my first thought was that her twitch was involuntary and reminded me of the Tourette's Syndrome people I saw on the morning talk shows. So like any good mother in denial, I took her to get her hair cut -- a short bob with short bangs. Of course this didn't help, but I played ignorant out of fear.
One Sunday evening while I was sitting in church, the nursery worker pulled me aside and shared with me her concerns. During her lesson she noticed The Daughter rolling her eyes from side to side, or back into her head in sharp, rapid, jerking motions. Having a daughter with a seizure disorder, she was fearful that my daughter may be suffering from something more severe than "twitches."
I left church and rushed straight to the emergency room. They ran a CAT on her and scheduled a follow up with a neurologist. After ruling out any abnormal brain activity he said, "Put her on Haldol, she has Tourette's Syndrome." I remember my first thought here too. I thought that if something could fix her, I'd do it.
While we waited for her follow up with the pediatrician (who would write the prescription) I did some research on my own. I found out that Haldol was a relatively new treatment for Tourette's. I also discovered through my research that the side affects of Haldol are permanent. Regardless of how long Haldol is taken, and how long it is not taken, a loss of tongue control is quite common and cannot be regained. If she displayed tongue dysplasia (akin to the tongue wagging outside the mouth), it would never go away. I told the pediatrician I would not put her on that medication while her symptoms were mild. He agreed that a follow up with the doctors at the childrens' hospital was in order.
They did an exam, agreed that Haldol would be a terrible thing to put her on at that stage, and sent a two page letter back to the pediatrician. I quoted some of that letter to you in yesterday's post. "Tourette's Probable."
But they also said it might NOT be Tourette's. They said she might grow out of it, or it might kick into full gear when she entered puberty.
So we watched, and we waited. We prayed a lot, had lots of people pray for her, and we played around with her diet, specifically we omitted red dye (a common food additive) from our home. In six months her symptoms went away. It was nothing short of a miracle, and I'll never credit anyone or anything with her improvement outside of God Himself.
Things went fine for almost ten years. Two summers ago her dad called and said he noticed she was "tic-ing" again, this time making harsh jaw movements like you might do if your jaw was locked and you were trying to loosen it. I fell back on the red dye and asked him to stop buying her Code Red Mountain Dew. She came home a few weeks later and was still displaying the new tic, but not as much as before. Removing caffeine seemed to calm her, and I chalked it up to "nervous energy." Still, "Tourette's Probable" remained in the back of my mind. Eventually the tic went away again.
It's been two years since I've seen anything that looked remotely like a tic. It wasn't until I found the third doctor's letter and read "...demanding/aggressive personality" that I remembered all the symptoms, not just the tics.
Does she have it? One in ten does. But for a diagnosis to be made, she must display three tics, one of which must be vocal, over the course of five years. We don't have that, and believe me when I tell you that she's well into the "onset" of puberty. But a demanding/aggressive personality, that she has in spades. OCD tendencies? Possibly.
So we continue to watch, we continue to wait. In the meantime, we try to make concessions for what might be a symptom of something that Mommy couldn't get the hair stylist to fix ten years ago.